Real People, Real Resilience: Penelope & Nicholas Share Their Health Stories
Featured Speakers:
Penelope De La O Torres β Type 1.5 Diabetes, Gastroparesis, Cancer Survivor
Nicholas Apharel β Type 2 Diabetes, Food Allergies, Gout, Arthritis
Moderated by:
Adimika Meadows Arthur β Founder & CEO, Health Tech 4 Medicaid
Challenges That Shaped Their Journeys
1. Health isnβt linearβand neither are systems.
Penelopeβs health journey began in childhood with diabetes and evolved to include gastroparesis, cancer, and a recent surgery. Despite years of managing her condition, she still faces medical complexityβand system fragmentation. βItβs not just about the body. Itβs about navigating care that makes you feel human,β she shared.
2. A diagnosis can feel like whiplash.
Nicholas went from pre-diabetic to full-blown type 2 diabetes in one momentβwith a sugar reading of 405 during a family trip. βI thought I had it managed. I didnβt,β he said. He also discovered severe food allergies, especially to cornβa staple in most processed foods. βYou think youβre making a good choiceβ¦ until you land in the hospital.β
When the System Fails, Self-Advocacy Steps In
3. Same insurance, two statesβtotally different care.
Both Penelope and Nicholas experienced the confusing reality of Medicaid varying by state. βI had UnitedHealthcare in Maryland and Texas. Same name. Different world,β said Nicholas. Penelope moved from Florida to Texas and saw immediate improvements. βOnce I learned how to use the system, it worked for meβnot against me.β
4. Medical complexity meets bureaucracy.
Nicholas now manages diabetes, arthritis, and goutβeach requiring separate specialists. βThe paperwork alone is exhausting. Some days I just think, I donβt want to do this.β Heβs still waiting on care approvals years after moving states.
Where Scene Health Helped
5. Scene helped build new habitsβand confidence.
At first, Penelope was unsure about recording herself taking meds. βBut it taught me discipline,β she said. βEven now that Iβve graduated, I still take my meds on time. I even inspire others.β
6. Accountability thatβs empoweringβnot punishing.
For Nicholas, Scene was a way to reset. βIβd forget meds, or get too busy. But Scene helped me stop and take action. Now I know when Iβve taken them. Itβs like a chef knowing when the ingredients are rightβit just works.β
Advice from Penelope & Nicholas
βTry itβyouβve got nothing to lose, and everything to gain.β
Whether youβre managing one condition or juggling many, they both say the same thing: Scene Health gave them tools, structure, and belief. βItβs not just meds. Itβs motivation.β
βOur bodies are complicated. The system is even more so. But Scene made me feel like someone had my back.β β Nicholas
βI learned from the bestβand now I donβt forget my meds. It became a habit I can be proud of.β β Penelope